{"id":13870,"date":"2025-05-07T10:29:24","date_gmt":"2025-05-07T09:29:24","guid":{"rendered":"https:\/\/www.pbhr.org.uk\/?post_type=podcast&p=13870"},"modified":"2025-05-07T12:09:31","modified_gmt":"2025-05-07T11:09:31","slug":"international-thalassaemia-day-2025","status":"publish","type":"podcast","link":"https:\/\/www.pbhr.org.uk\/?podcast=international-thalassaemia-day-2025","title":{"rendered":"International Thalassaemia Day 2025"},"content":{"rendered":"\t\t
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\t\t\t\tInternational Thalassaemia Day 2025<\/span>\n\t\t\t\t<\/h3>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\t\tFirst Broadcast 7th May 2025<\/span>\t\t<\/h3>\t\t\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\"\"Dennis Duncan speaks with Gabriel Theophanous and Photoulla Wilson, both thalassaemia patients and members of the UK Thalassaemia Society (UKTS).<\/p>

International Thalassaemia Day 2025<\/strong> shines a light on beta thalassaemia, a lifelong, inherited blood disorder that affects red blood cell production and oxygen transport in the body. This can lead to symptoms like fatigue, poor growth, muscle weakness, and osteoporosis. Though historically concentrated in the Mediterranean, Southeast Asia, and the Middle East, beta thalassaemia now appears more widely due to global migration. Today, an estimated 290,000 people live with the condition worldwide, with around 1,400 patients registered in the UK as of 2024.<\/p>

Gabriel Theophanous, Operations Manager at the UK Thalassaemia Society, highlights the often invisible burden of living with thalassaemia. Beyond physical symptoms, individuals may face social isolation, emotional strain, and the logistical challenges of frequent blood transfusions. Families and caregivers are also deeply affected\u2014often taking time off work and bearing financial and emotional responsibilities. Raising awareness is essential, especially within at-risk communities, to support early diagnosis and appropriate care. In the UK, there are currently ten screening centres dedicated to thalassaemia.<\/p>

Today\u2019s event is supported by Vertex, a global biotech company committed to tackling serious diseases through innovation. With their support, the UK Thalassaemia Society continues its mission to educate the public and healthcare professionals, advocate for improved treatment, and provide crucial emotional and practical support to those impacted. On this International Thalassaemia Day, the focus is clear: thalassaemia is a lifelong condition that demands lifelong awareness, compassion, and action.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Darlington Memorial Bereavement Suite – 100 miles run<\/a><\/h3>\n\t\t\t

\n\t\t\t\ttoday<\/i>1 May 2026<\/span>\t\t\t\t<\/i>136<\/span><\/span>\t\t\n\t <\/i><\/span><\/span>\n\t <\/a>\n\t\t<\/span>\t\t\n\t\t\t<\/i><\/span><\/span>\n\t\t<\/a>\n\t\t<\/span>\t\t\t<\/p>\n\t\t<\/div>\n\t<\/div>\n\t<\/article>\n<\/div>

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\n\t\t\t\ttoday<\/i>13 February 2026<\/span>\t\t\t\t<\/i>39<\/span><\/span>\t\t\n\t <\/i><\/span><\/span>\n\t <\/a>\n\t\t<\/span>\t\t\n\t\t\t<\/i><\/span><\/span>\n\t\t<\/a>\n\t\t<\/span>\t\t\t<\/p>\n\t\t<\/div>\n\t<\/div>\n\t<\/article>\n<\/div>

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National Grief Awareness Week<\/a><\/h3>\n\t\t\t

\n\t\t\t\ttoday<\/i>4 December 2025<\/span>\t\t\t\t<\/i>69<\/span><\/span>\t\t\n\t <\/i><\/span><\/span>\n\t <\/a>\n\t\t<\/span>\t\t\n\t\t\t<\/i><\/span><\/span>\n\t\t<\/a>\n\t\t<\/span>\t\t\t<\/p>\n\t\t<\/div>\n\t<\/div>\n\t<\/article>\n<\/div>

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Reducing Energy Bills<\/a><\/h3>\n\t\t\t

\n\t\t\t\ttoday<\/i>6 November 2024<\/span>\t\t\t\t<\/i>19<\/span><\/span>\t\t\n\t <\/i><\/span><\/span>\n\t <\/a>\n\t\t<\/span>\t\t\n\t\t\t<\/i><\/span><\/span>\n\t\t<\/a>\n\t\t<\/span>\t\t\t<\/p>\n\t\t<\/div>\n\t<\/div>\n\t<\/article>\n<\/div>

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Pathology Awareness Week<\/a><\/h3>\n\t\t\t

\n\t\t\t\ttoday<\/i>6 November 2024<\/span>\t\t\t\t<\/i>16<\/span><\/span>\t\t\n\t <\/i><\/span><\/span>\n\t <\/a>\n\t\t<\/span>\t\t\n\t\t\t<\/i><\/span><\/span>\n\t\t<\/a>\n\t\t<\/span>\t\t\t<\/p>\n\t\t<\/div>\n\t<\/div>\n\t<\/article>\n<\/div>

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Leon Ward from MyBNK talks financial literacy<\/a><\/h3>\n\t\t\t

\n\t\t\t\ttoday<\/i>1 November 2024<\/span>\t\t\t\t<\/i>18<\/span><\/span>\t\t\n\t <\/i><\/span><\/span>\n\t <\/a>\n\t\t<\/span>\t\t\n\t\t\t<\/i><\/span><\/span>\n\t\t<\/a>\n\t\t<\/span>\t\t\t<\/p>\n\t\t<\/div>\n\t<\/div>\n\t<\/article>\n<\/div>

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Simon Weston CBE talks about EB<\/a><\/h3>\n\t\t\t

\n\t\t\t\ttoday<\/i>29 October 2024<\/span>\t\t\t\t<\/i>55<\/span><\/span>\t\t\n\t <\/i><\/span><\/span>\n\t <\/a>\n\t\t<\/span>\t\t\n\t\t\t<\/i><\/span><\/span>\n\t\t<\/a>\n\t\t<\/span>\t\t\t<\/p>\n\t\t<\/div>\n\t<\/div>\n\t<\/article>\n<\/div>

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Will Lang from the Met Office<\/a><\/h3>\n\t\t\t

\n\t\t\t\ttoday<\/i>29 October 2024<\/span>\t\t\t\t<\/i>34<\/span><\/span>\t\t\n\t <\/i><\/span><\/span>\n\t <\/a>\n\t\t<\/span>\t\t\n\t\t\t<\/i><\/span><\/span>\n\t\t<\/a>\n\t\t<\/span>\t\t\t<\/p>\n\t\t<\/div>\n\t<\/div>\n\t<\/article>\n<\/div>

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\n\t\t\t\t\t\n\t\t\t\t\t\tplay_arrow<\/i>\n\t\t\t\t\t<\/span>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\n\n\t\t\t\t\t\t\n\t\t\t<\/i><\/span><\/span>\n\t\t<\/a>\n\t\t<\/span>\n\t\t\n\n\t\t\t\t\t\t\n\t <\/i><\/span><\/span>\n\t <\/a>\n\t\t<\/span>\n\t\t\t<\/div>\n<\/div>\n\n\n\t\t
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James Stewart Talks Recycling<\/a><\/h3>\n\t\t\t

\n\t\t\t\ttoday<\/i>23 October 2024<\/span>\t\t\t\t<\/i>14<\/span><\/span>\t\t\n\t <\/i><\/span><\/span>\n\t <\/a>\n\t\t<\/span>\t\t\n\t\t\t<\/i><\/span><\/span>\n\t\t<\/a>\n\t\t<\/span>\t\t\t<\/p>\n\t\t<\/div>\n\t<\/div>\n\t<\/article>\n<\/div>\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"author":1,"featured_media":13888,"template":"page-sidebar.php","tags":[],"podcastfilter":[124],"class_list":["post-13870","podcast","type-podcast","status-publish","has-post-thumbnail","hentry","podcastfilter-interviews"],"_links":{"self":[{"href":"https:\/\/www.pbhr.org.uk\/index.php?rest_route=\/wp\/v2\/podcast\/13870","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.pbhr.org.uk\/index.php?rest_route=\/wp\/v2\/podcast"}],"about":[{"href":"https:\/\/www.pbhr.org.uk\/index.php?rest_route=\/wp\/v2\/types\/podcast"}],"author":[{"embeddable":true,"href":"https:\/\/www.pbhr.org.uk\/index.php?rest_route=\/wp\/v2\/users\/1"}],"version-history":[{"count":31,"href":"https:\/\/www.pbhr.org.uk\/index.php?rest_route=\/wp\/v2\/podcast\/13870\/revisions"}],"predecessor-version":[{"id":13904,"href":"https:\/\/www.pbhr.org.uk\/index.php?rest_route=\/wp\/v2\/podcast\/13870\/revisions\/13904"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.pbhr.org.uk\/index.php?rest_route=\/wp\/v2\/media\/13888"}],"wp:attachment":[{"href":"https:\/\/www.pbhr.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=13870"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.pbhr.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=13870"},{"taxonomy":"podcastfilter","embeddable":true,"href":"https:\/\/www.pbhr.org.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fpodcastfilter&post=13870"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}